Know what a study asks
before you make the call .
Orva explains clinical research in six areas of health, opens the public register for each one, and sends optional updates by text. What you do next is up to you.
- Listing
- Criteria
- Locations
- Contacts
- Questions
Reading a listingExample
Search the register+Status
RecruitingopenType
InterventionaltestsPhase
Later phasecompareArea
EpilepsyfocalCriteria, in plain words
- Seizure type confirmed by a specialist
- Seizures continue on current medicine
- Doses steady for a set time first
- Recent emergency care for long seizures
Your questions for the team
- Do I keep my current medicines?
- Who records my seizures?
- How far is the nearest site?
Read about the research, find it on the register, then make the call yourself
Read
Read what studies
in an area look at
Search
Open the live register,
already filtered
Contact
Call the study team
it lists, if you wish
Multiple sclerosis, Epilepsy, Chronic cough, Alopecia, Gout, Anemia, Study listings, Plain words, Your data, Follow-up visits, Updates by text

Six areas of health, and the help
to read the research in each
Multiple Sclerosis
Relapses, progression, fatigue and walking: research on how MS behaves and how to slow it.
Epilepsy & Seizures
For seizures that keep coming despite treatment: added medicines, devices, diet and detection.
Chronic Cough
A cough that stays for months after tests find no cause. Research on the reflex behind it.
Hair Loss & Alopecia
Patchy, pattern and scarring hair loss: research on medicines, devices and why it happens.
Gout & Uric Acid
Painful flares and the uric acid behind them: research on lowering it and calming attacks.
Anemia & Iron
Low iron and low red cells: research on infusions, tablets and the conditions behind them.
Plain-word guides
Three guides that help with any area: reading a listing, your data, and long studies.
Updates by text
Occasional texts or emails about research in the six areas. One reply stops them.
Questions worth asking a study team,
and where to read more
Which lines in the criteria apply to me, and which can you check for me?
Who will see information that carries my name?
How long does my part last, and how often are the visits?
Can I keep seeing my own doctor during the study?
Two kinds of study, and what each one asks of you
Early phase
Safety first
- Small groups of people
- Close watch on safety and dose
- Often short, with frequent visits
- Sometimes healthy volunteers
Later phase
Compare
- Larger groups, often at many sites
- Compared with placebo or usual care
- Months or longer
- Random assignment to groups
Extension
Continue
- Follows a main study
- Everyone receives the study treatment
- Watches long-term safety
- A separate, optional choice
Registry
Record
- Collects information over time
- No change to your care
- Often visits you already have
- May run for many years
Natural history
Follow
- Tracks how a condition changes
- Regular check-ins and tests
- Helps design future studies
- No study treatment
Measurement
Measure
- Tests a scan, device or questionnaire
- Usually short
- One or a few visits
- Checks how well a tool works
Things people ask before they sign up
An information service about clinical research in six areas of health. Orva explains what studies look at, links to the public register, and sends optional updates by text or email. It does not run studies or treat anyone.
No. A text or email from Orva can tell you about research, but it never enrolls you in anything. If a study interests you, you contact its team yourself, and the team decides who takes part.
No. Your details stay with Orva and are used only to send the updates you asked for. Study teams, sponsors and research sites never receive them.
Nothing Orva offers costs anything. Message and data rates from your mobile carrier may apply to texts.
Only now and then, and never more than four times in a month. Reply STOP to any text to end them, or HELP for help.
Get study updates by text
Occasional texts or emails about research in Orva’s six areas, from Orva alone.
Go to the sign-upIt is free, the text box is optional, and one reply stops the texts.
Read the listing, Ask the team, Decide for yourself, Stay informed
What every study volunteer can count on
You can stop taking part in a study whenever you choose, without giving a reason. Your regular care carries on exactly as before.
Before you agree to anything, the study team explains the study and answers your questions. You can take the consent form home and read it there.
A study does not replace your own doctor. You keep seeing them, and you can ask the study team to keep them informed.
If the team learns something during the study that might change your mind about taking part, they tell you.
Research on people is reviewed by an ethics board before it begins, to check that the risks are explained and kept as low as they can be.


